Ethics Rapporteur Programme
The Ethics Rapporteur Programme is a vital component of the ethics governance of the Human Brain Project, which aims to identify, address and provide, collaboratively, a broad and general overview of emergent social and ethical questions that arise during the HBP, contributing to an overall uptake of principles and practices of responsible research and innovation (RRI) across the HBP.
The HBP Ethics Rapporteur is an academic, a scientist, a technologist or an administrator engaged in the HBP work. Ethics Rapporteurs include senior and junior members, each possessing a unique set of science, technology, and ethics competencies.
Ethics Rapporteurs have monthly meetings and communicate regularly with the Ethics Advisory Board members and the HBP Ethics Coordination team. Joint meetings between the three bodies are held periodically.
The Ethics Rapporteur Programme and its Work package and Ethics Advisory Board participants identify and discuss emergent ethical and social questions that arise from scientific or other activity of the HBP. Those questions are systematised periodically in the so-called "One-pager Compilation Report on Ethical Issues", which gives an ongoing high-level overview of the ethics and social-related questions of the HBP. Participants may choose to register ethical, regulatory, or social issues in the Point of Registration (PORE), ensuring the issues can be followed through to a result or disposition.
If you have a question concerning the ethical, social or regulatory issues of a particular Work package, you may contact one or more of the representative Ethics Rapporteurs, who are listed below. You can also contact Manuel Guerrero, who is the Ethics Rapporteur Programme lead.
If you would like to read further about the Ethics Rapporteur Programme, you can find more information here.
Human Brain Project’s Ethics Rapporteurs
Work Package 1: The human multiscale brain connectome and its variability – from synapses to large-scale networks and function
Institut NeuroPSI, CNRS Université Paris-Saclay Gif-Sur-Yvette
damien.depannemaecker@cnrs.fr
Work Package 2: Networks underlying brain cognition and consciousness
Centre for Research Ethics & Bioethics, Uppsala University
michele.farisco@crb.uu.se
Cognitive Neuroimaging Unit, CEA, INSERM, Université Paris-Sud, Université Paris-Saclay, Gif-Yvette
theofanis.panagiotaropoulos@cea.fr
Work Package 3: Adaptive networks for cognitive architectures: from advanced learning to neurorobotics and neuromorphic applications
Work Package 4: EBRAINS Data Services
Erika Borcel
Centre Hospitalier Vaudois
Erika.Borcel@chuv.ch
Work Package 5: EBRAINS Modeling Services
Work Package 6: EBRAINS Computing Services
Work Package 7: Management and Coordination
Work Package 8: Communication, Outreach and Exploitation
Judith Kathrein
Medizinische Universität Innsbruck
judith.kathrein@i-med.ac.at
Work Package 9: Responsible Research and Innovation
Centre for Research Ethics & Bioethics, Uppsala University
manuel.guerrero@crb.uu.se
Register an Ethical Concern
Anyone can requests to address ethical, regulatory and social issues in Human Brain Project research. The POint of REgistration (PORE) is HBP’s mechanism to register and identify these issues and keep track of how they are dealt with.
